It really did and then it just kept going so here I am.... I have been feeling all the feels this week. This is always a hard week for me...

As a rare disease mom, and mom to one young adult son who struggles with severe depression as a result of his illness and the effects of...

In the Addison's community I see some who celebrate their Add-iversary. If we were to celebrate it, it would be tomorrow. December 14,...

I shared a lot in the last week about what my family has been through and where we are headed. And I really will share a lot of the nitty...

November is Caregiver Appreciate Month. As in my last writing I shared what has happened in the last year and a half in our house, in...

Let me preface this all by saying, as I begin to share more of the story of where our rare disease story has gone in the last two years,...

I had been really consistent at being here and at writing out my life as an advocate for two young adult children with rare, chronic...

Last week I had a doctors appointment, get this - for myself. It is so important when you are a caregiver to continue to take care of...

This morning I had an interview with a student going to school for community health who is focused on caregiving. It is something that is...

It has been a minute since I have been on here. And since then our rare kiddo has had his first all inclusive vacation out of the country...

Since late 2023 I have been handling all of the social media posts for Adrenal Insufficiency United. That in and of itself is a rather...

As our son grows older there are different phases where the "could have beens" hit a little harder. Where I see those who were his peers...

It was actually the 16th Rare Disease Day, but for me and my family it was our ninth. It was late 2015 when our youngest was diagnosed...

Image shared from Rarediseases.org Since I started this blog a year ago this week I have shared all kinds of statistics on here. And...

I can remember being a new mom, back more than 22 years ago and worrying about every little thing that happened or may happen. I can...

Last night I was part of a social media discussion on how to recognize Rare Disease Day hosted by NORD (National Organization for Rare...

I live in a part of the country that was hit with some pretty unusual weather over the last few weeks. We had a couple of weeks where...

Near the end of December our son had a routine endocrine appointment for his Addison's Disease. With Addison's Disease there are...

I was scrolling Instagram this morning and came across an influencer using this phrase to talk about a lipstick that was on sale. And...

Almost all of my posts are about rare disease. As a refresher, a rare disease in the United States is defined as a disorder or condition...